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Lack of privacy laws could delay vital mHealth apps
  • Lack of privacy laws could delay vital mHealth apps

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  • Most African countries have not implemented data privacy laws

  • People with conditions such as AIDS may avoid mHealth apps over security fears

  • mHealth should still be rolled out as laws develop and technology fixes can also help

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Some patients could refuse to allow personal information to be collected by mHealth applications, fearing a lack of security, which calls for urgent drafting of policy by governments to guarantee protection of patient data, the authors say.

The report, by TrustLaw Connect, a pro bono legal initiative of the Thomson Reuters Foundation, and supported by partners including the mHealth Alliance, examines the global status of patient privacy on mHealth and includes case studies on countries in Africa, Asia and Latin America.

It finds that most African countries have not implemented comprehensive data privacy laws like those existing in Europe, and have also not enacted laws that provide broad protection for health data such as measures passed in the United States.

None of the three case studies in Africa Nigeria, Tanzania and Uganda have amended their health acts to regulate data for mHealth, with Nigeria relying on a code of conduct to guide practitioners on data protection.

The primary risk of not having explicit laws assuring patient confidentiality is that many people may avoid accessing necessary services, William Philbrick, technical advisor at the mHealth Alliance, tells SciDev.Net.

This is particularly true when we are talking about HIV, which still carries considerable stigma, and women may also be reluctant to seek out health services for sexual and reproductive health out of concern that their personal health information is shared with third parties, he adds.

She says that mHealth is a new branch of healthcare that has great potential to save lives but is still evolving in Africa, and so there is an absence of laws in many countries.

It is very important to have a law dealing with data security that ensures patient confidentiality, but countries must continue to deploy mHealth tools to save lives while they formulate laws, she says.

Philbrick agrees that the absence of laws should not hold up life-saving applications, adding that technology developers are filling data protection gaps by including security components in mHealth applications and platforms.

Link to full report

This article has been produced by SciDev.Nets Sub-Saharan Africa desk.

References

Patient privacy in a mobile world: A framework to address privacy law issues in mobile health Thomson Reuters Foundation (2013)
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