Research initiatives/academic groups
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Launched in April 2003, this site outlines the Aga Khan University’s activities in medical and research ethics, and includes information about the research ethics committee, hospital ethics committee and bioethics group. Following receipt of a two-year developmental grant from the Fogarty International Centre / US National Institute of Health, the "Pakistan Bioethics Programme: Gateway to the Islamic World" is being developed. Plans are underway to offer a Masters in Bioethics, as well as certificate courses in research ethics, clinical ethics, bioethics education, and health equity, policy and ethics.
The Alliance for Microbicide Development brings together pharmaceutical companies, non-profit research institutions and advocacy groups dedicated to the development of topical microbicides. A major highlight of its website is the new Microbicides Research and Development Database
. This contains detailed information on the status of individual microbicide products, principle investigators and trial locations. (Free registration is needed for access, and some information is restricted). There is also an excellent weekly digest of news relating to microbicides reserach and development, and the Microbicide Quarterly
, which has meeting reports, interviews and expert-authored articles on all areas from basic research to clinical and regulatory issues.
This up-to-date and comprehensive website from the American Journal of Bioethics covers a wide range of issues in bioethics, including articles on research ethics. The site is very useful for monitoring current controversies and developments but other links provide more useful resources specifically related to research in developing countries (such as the list of educational resources
The Center for Genome Ethics, Law, & Policy - part of Duke University's Institute for Genome Sciences and Policy - was created to foster ethically responsible and socially beneficial uses of genome science, while addressing the complex ethical, legal, social and policy impacts of the genome revolution.
This website offers information on a programme at the Harvard School of Public Health. It includes material on the principles of research ethics, informed consent, responsibilities to the study community, mechanisms of approval and the role of funders. Also available are a selection of case studies, an email discussion group, and links to a useful selection of readings
on research ethics.
HAVEG has been established to conduct research on the ethical aspects of HIV vaccine research. This useful website provides information about the group's past and future studies. It also includes summaries of HAVEG’s activities in training, debate and consensus building, guideline development and work with the Ethics, Law and Human Rights working group of the African AIDS Vaccine Programme. Links are provided to HAVEG publications and to other organisations with relevant ethics resources.
The Nuffield Council on Bioethics is an independent UK organisation that was established in 1991 to identify, examine and report on the ethical questions raised by recent advances in biological and medical research. The Council has recently completed a three-year study of the ethics of research related to healthcare in developing countries. This substantial website provides information about the project, including the full text of the final report
A lead programme of the South Africa, Medical Research Council, SAAVI is committed to the research, development and testing of HIV/AIDS vaccines, working with national and international partners. Its website contains full descriptions of the scientific, clinical and ethical approaches being taken for the development of HIV vaccines tailored to local strains of HIV, including contact details of the researchers involved, funding and updates on progress.
The JCB is a multidisciplinary effort to provide leadership in bioethics research, education, and clinical activities. One of its key research areas is genomics and global health, and the JCB is involved in a number of projects aimed at averting the formation of a "genomic divide" - akin to the "digital divide" - between the developed and developing world. Its projects are supported through three grants: The Program in Applied Ethics and Biotechnology, the Canadian Program in Genomics and Global Health, and Bridging the Emerging Genomics Divide.